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National Prostate Cancer Advocacy Group Elevates Caregivers and Patients to New Leadership Body

 ZERO announces new Patient and Caregiver Advisory Board



Ilana Ostrin

Washington, D.C. ZERO – The End of Prostate Cancer is honored to unite advocates in the fight against prostate cancer onto an inaugural board of caregivers and patients. The Patient and Caregiver Advisory Board (PCAB) will help meet unmet patient needs, enhance ZERO’s reach of programs and support, and show the love to other patients and families.

Involving patients and caregivers in the design of ZERO’s various programs and outreach efforts is critical to support the many men and families fighting this awful disease. PCAB members are committed volunteers, and are either patients, survivors, caregivers (spouses, family members, etc.) or someone who has lost a loved one to the disease. Members of the board will provide their unique and invaluable perspective to ZERO’s team, stakeholders, and partners to help improve ZERO’s educational and support programs with the goal of better serving patients and families. 

“Patients and caregivers are at the heart of everything we do at ZERO,” said ZERO CEO, Jamie Bearse. “As our patient support programs continue to grow, our PCAB will be an invaluable resource to help meet patient needs while amplifying the cause-driven passion among members of the prostate cancer community.” 

Serving as key advisors and organizational representatives, PCAB members will also serve as mentors to others, media spokespeople, social media influencers, and community leaders. PCAB members are prepared and willing to make a difference and raise awareness in any way they can. 

“We are very grateful for the wealth of knowledge and personal experience that our PCAB members share with us,” said PCAB Chairman, Tom Bognanno. “They are the true heroes and I am honored to serve with them.”

Inaugural PCAB members include:

Tom Bognanno
Chairman, Prostate Cancer Survivor
Springfield, VA

Jacqueline Aguilar
Prostate Cancer Caregiver
Redlands, CA

Vivian Avery
Prostate Cancer Caregiver
Olathe, KS

Barry Berglund
Prostate Cancer Patient
Greensboro, NC

Sheila Bryson
Prostate Cancer Caregiver
Herriman, UT

Ken Cavellier
Prostate Cancer Survivor
Mason, OH

Mark Good
Prostate Cancer Survivor
Waukee, IA

Chris Hartley
Prostate Cancer Patient
Cedar Park, TX

Laurel Philibin
Prostate Cancer Caregiver
Alexandria, VA

Chas Rodgers
Prostate Cancer Survivor
Rancho Santa Fe, CA

Susie Schlernitzauer
Prostate Cancer Caregiver
Miami, FL

Phil Shulka
Prostate Cancer Survivor
Baltimore, MD

John Vaughn
Prostate Cancer Survivor
Mattapoisett, MA

Marissa Waskiewicz
Prostate Cancer Caregiver
Westminster, MD

The introduction of the PCAB comes at a critical time, as the needs of patients and caregivers are more serious than ever, due to the COVID-19 outbreak. At present, ZERO programming and support offerings for patients and families includes ZERO360, MENtor, Caregiver Connector, and ZERO Connect. For more resources for patients and families, visit zerocancer.org

About ZERO — The End of Prostate Cancer
ZERO — The End of Prostate Cancer is the leading national nonprofit with the mission to end prostate cancer. ZERO advances research, improves the lives of men and families, and inspires action. We’re building Generation ZERO, the first generation of men free from prostate cancer, through our national run/walk series, education and patient support programs, and grassroots advocacy. ZERO is a 501(c)(3) philanthropic organization recognized with four out of four stars by Charity Navigator, accredited by the Better Business Bureau, with regional chapters across the country. We dedicate 85 cents of every dollar to research and programs. For more information, visit www.zerocancer.org.