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Patient Support Hotline

Call (844) 244-1309

ZERO360 is a free, comprehensive patient support service to help patients and their families navigate insurance and financial obstacles to cover treatment and other critical needs associated with cancer.

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Audio, Video, Tools & Links

Us TOO Publications | Webinars/Audio/Video Archives | Books of Interest | Physician Resources | Financial Assistance Resources | Other Resources | Us TOO Online Information Request Center

Us TOO Publications

 

Brochures & Pamphlets – To request hardcopies of the following materials, use our online Information Request Center. Otherwise, click on the links below to read PDF documents.

Poster Sessions

Videotapes and DVDs – To request, please call 630-795-1002 or email ustoo@ustoo.org

  • About Prostate Cancer 0:30 sec Public Service Announcement (Spanish language) – DVD
  • About Prostate Cancer 0:30 sec Public Service Announcement (Spanish language) – VHS
  • “Todo Lo Que Usted y Su Familia Necesita Saber Sobre el Cancer de Prostata” 
    (“What Every Man and his Family Should Know About Prostate Cancer”) – 15 min. VHS, see transcript in English here
  • “Todo Lo Que Usted y Su Familia Necesita Saber Sobre el Cancer de Prostata” 
    (“What Every Man and his Family Should Know About Prostate Cancer”) – 15 min. DVD, see transcript in English here

Other Brochures and Pamphlets

Us TOO Annual Reports

Webinars/Audio/Video Archives

Audio / Webinars

Video

Books

Physician Resources

Financial Assistance Resources

Travel

Early access programs

Prescription Assistance / Patient Assistance Programs (PAP)

  • Diplomat Specialty Pharmacy Patient Advocacy Navigator – Can help patients with funding to off-set high co-payments. Also has pharmacists, nurses and oncology patient navigators on staff to answer any questions about your medications. See flyer for more info
  • Needy Meds – a 501-c-3 non-profit information resource devoted to helping people in need find assistance programs to help them afford their medications and costs related to health care. Provides free access to online databases such as Patient Assistance Programs, Disease-Based Assistance, Free and Low- Clinics, government programs and other types of assistance programs. Also has resources for Patient Advocates.
  • Novartis Oncology Patient Assistance NOW – provides programs that may help pay for medicines like Zometa® (zoledronic acid) Injection, and/or provide access to drugs still in clinical trial. Also read their Brochure

Negotiating

  • How to Ask for a Reduced Medical Bill
  • Bargaining Down the Medical Bills – tips on negotiating costs in an excellent NY Times article:

    Tips and suggestions from an Us TOO Inspire community member, Feb 2011:

    1. Do not be intimidated to ask for a discount even if none was offered up front. Ask and then ask again if that is the best they can do. Ask for the billing manager.
    2. Explain your total financial situation. Even if your bill with them is small if you are facing large total bills they sometimes have "catastrophic financial" discounts the billing manager can offer.
    3. Knowledge is power. If you can find out or estimate what medicare/medicaid is reimbursing for the procedure that is a great starting point. Tell them you are paying out of your own pocket and so why should you pay more than a medicare patient would. I told them my starting point was the medicare reimbursement amount but that I was willing to pay 2x that to be "fair". they often jumped at that…even though it was still less than half the original bill.
    4. Doctors are often happy to be paid anything at all and they prefer to be paid sooner than later. So if all else fails you can tell them that unless you can decrease the amount you will have to pay them $10 per month for the rest of your life. They often would prefer to get less and get it NOW than to get more and have to wait and chase the money down later.

More Resource Listings

 

Other Resources

National

  • All Sports Foundation – Prostate On-Site Project mobile screening van program
  • CANCER101 
    Provides planners to cancer centers in all 50 states to give free to their patients and caregivers in need. Planners include essential organizational tools and important resources designed to empower patients and caregivers to take control over their diagnosis.
  • Cancer.com 
    A comprehensive listing of credible websites for those whose lives are touched by cancer
  • CancerCare
    Provides online and telephone patient education
  • Cancer Financial Assistance Coalition (CFAC) 
    Helps patients and their loved ones connect easily with organizations that offer financial assistance.
  • Cancer Legal Resource Center (CLRC) 
    The CLRC provides free and confidential information and resources on cancer-related legal issues to cancer survivors, caregivers, employers, health care professionals, and others coping with cancer.
  • The Cancer Project 
    The Cancer Project promotes cancer prevention and survival through a better understanding of cancer causes, particularly the link between nutrition and cancer.
  • Cancer Support Community 
    Uniting The Wellness Community and Gilda’s Club Worldwide, the Cancer Support Community is an international non-profit dedicated to providing support, education and hope to people affected by cancer
  • Center for Information and Study on Clinical Research Participation (CISCRP) 
    A non-profit organization founded in 2003 that educates, informs and empowers patients, the public, medical and research professionals, the media and policymakers about clinical research participation

  • Coalition of Cancer Cooperative Groups (Cancer Clinical Trials)
    A nonprofit organization providing patient awareness of clinical trials, facilitating access, promoting participation, and examines and confronts key issues impeding cancer research.
  • Congressionally Directed Medical Research Programs (CDMRP)
    Department of Defense Prostate Cancer Research Program is the world’s 2nd largest funding agency for prostate cancer research.Read the "PCRP Perspectives" newsletter here.
  • Conquer Prostate Cancer: How Medicine, Faith, Love and Sex Can Renew Your Life
    Rabbi Ed Weinsberg, a prostate cancer survivor, patient healthcare and intimacy educator, author, and participant in several Us TOO forums, offers free teleseminars in support of prostate cancer patients, survivors and their wives or partners: “Enhancing Sexual Intimacy After Prostate Cancer" and "How Family, Friends and Support Groups Can Help You Get Through Prostate Cancer Treatment and Side Effects."
  • Fans for the Cure – Ed Randall’s Fans for the Cure is dedicated to the twin propositions of spreading the gospel of prostate cancer awareness and education. Founded by prostate cancer survivor and sports broadcaster, Ed Randall.
  • HealthEcho.com – Directory of Health 
    Large health and medicine web directory for both humans and animals, linking to more than 30,000 health-related organizations
  • Imerman Angels
    Provides one-on-one cancer support, connecting cancer fighters, survivors and caregivers.
  • International Union Against Cancer
    As the world's largest independent, non-profit, non-governmental association of cancer-fighting organisations, UICC brings together a wide range of international organisations, including voluntary cancer societies, research and treatment centres, public health authorities, patient support networks and advocacy groups. UICC disseminates knowledge and fosters best practices on a global scale. With over 270 member organisations in more than 80 countries, UICC is a resource for action and a voice for change. 
  • malecare.org
    A website dedicated to men's health and cancer, prostate cancer, testicular cancer and male breast cancer treatment and support
  • Men's Health Network (MHN) 
    A national non-profit organization whose mission is to reach men and their families where they live, work, play, and pray with health prevention messages and tools, screening programs, educational materials, advocacy opportunities, and patient navigation.
  • National Alliance of State Prostate Cancer Coalitions (NASPCC)
    An umbrella organization meant to encompass participation by all states – through their state prostate cancer coalitions, state prostate cancer task forces or state prostate cancer foundations.
  • National Association For Continence (NAFC)
    A national, non-profit 501(c)(3) organization dedicated to improving the quality of life of people with incontinence; a leading source for public education and advocacy about the causes, prevention, diagnosis, treatments, and management alternatives for incontinence.
  • National Cancer Institute (www.cancer.gov)
    Offers comprehensive information about coping with cancer, cancer causes and prevention, screening and diagnosis, treatment and survivorship; clinical trials; statistics; and more
  • National Coalition for Cancer Survivorship 
    This national, patient-led advocacy organization works on behalf of people with all types of cancer. Through its educational programs, publications and public policy expertise, NCCS is strengthening the cancer survivorship movement, empowering cancer survivors, and advocating for policy issues that affect survivors' quality of life
  • Navigating Cancer 
    Online community for cancer patients and their support network offering free health tracking tools and personalized resources to improve their care and quality of life during treatment.
  • NexProfiler Treatment Options Tool for Prostate Cancer
    Free, web-based, personalized tool for identifying treatment options
  • OncoLink 
    The University of Pennsylvania Cancer Center Resource
  • Patient Advocate Foundation
    A national non-profit organization that serves as an active liaison between the patient and their insurer, employer and/or creditors to resolve insurance, job discrimination, and or debt crisis matters relative to their diagnosis through case managers and attorneys
  • People Living with Cancer
    The award winning patient website from the American Society of Clinical Oncology that provides accurate, comprehensive, oncologist-approved information to help people make informed health care decisions
  • Peyronie's Disease – Association of Peyronie's Disease Advocates Provides information, support, and relevant referral services to patients, partners, and physicians seeking Peyronie’s disease resources.
  • Pints For Prostates
    A grassroots campaign that uses the universal language of beer to reach men with an important health message, with appearances at beer festivals, social networking and pro bono advertising.
  • Prostate.com 
    A comprehensive resource for information about the prostate, diseases of the prostate, and the available treatments
  • Prostate Conditions Education Council (PCEC)
    Conducts nationwide screenings for men and performs research that will help the detection and treatment of prostate cancer and other men’s health issues
  • Prostate Cancer Foundation
    Prostate Cancer Foundation (PCF) is the world's largest philanthropic source of support for prostate cancer research
  • Prostate Cancer Research Institute (PCRI)
    The objective of PCRI is to educate patients and their families about prostate cancer
  • Prostate Cancer Roundtable
    a group of 12 independent, patient-centric, not-for-profit organizations that cooperate to foster the development and implementation of a national policy agenda supporting high quality prostate cancer research, the prevention and early detection of clinically significant prostate cancer, the appropriate care and effective treatment of men with prostate cancer, and the appropriate education of all men at risk for this disease. Us TOO is a charter member of this group.
  • Prostate Cancer Statistics 
    Information from the NCI Surveillance Program (SEER), the CDC National Center for Health Statistics
  • Prostate Pointers 
    An active online prostate community
  • Scott Hamilton CARES Initiative – 4th Angel Program 
    A free, national service which provides a one-to-one supportive mentor relationship (phone or email based) to cancer patients and their caregivers.
  • The Prostate Net 
    provides understandable and accurate cancer-related information in areas with significant minority populations
  • The Simon Foundation for Continence
    A non-profit 501-c-3 organization dedicated to bringing the topic of incontinence out into the open, removing the stigma surrounding incontinence, and providing help and hope for people with incontinence, their families, and the health professionals who provide their care.
  • The Group Room radio show
    Weekly syndicated cancer talk show, Sundays
  • World Wide Prostate Cancer Coalition (WWPCC)
    The WWPCC is a confederation of patient and professional organizations from around the world that will seek to share information, ideas, visions and dreams to minimize the impact of prostate diseases, especially prostate cancer, in the global community.
  • YANA Now – You Are Not Alone Now
    Read and post stories and experiences from prostate cancer survivors.
  • ZERO: The Project to End Prostate Cancer (formerly NPCC, the National Prostate Cancer Coalition)
    Advocacy and mobile van screening program
  • 50 Hoops 
    Non-profit, 501-c-3, national cancer awareness basketball tournaments and health fairs, plus National Physician & Family Referral Project (NPFR), which develops seminars, lecture series and coalitions of African American leaders for various diseases.

 

Regional

International

  • BPS
    The German prostate cancer self-help organization

Other Topics

Nutritional Information

Activism

  • Prostate Action Network is a tool box, provided by Ralph Valle, for prostate cancer activists. The press releases, speeches, fact sheets and other material here are intended to be adapted by prostate cancer patients and their families and friends to stimulate increased awareness, more funding and improved treatment options

End of Life Issues

  • Last Acts 
    Call-to-action campaign dedicated to improving end-of-life care through sharing of ideas and solutions by professional care givers, institutions and individuals. The Last Acts web site includes news updates, a resource center and reports on palliative care, family needs, service providers, education and training, and financing and the workplace

Alternative Medicine

Prostatitis