Access Additional Resources
Prostate Cancer Websites & Resources
- My Prostate Cancer Coach
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Prostate.com
A comprehensive resource for information about the prostate, diseases of the prostate, and the available treatments -
The Prostate Net
provides understandable and accurate cancer-related information in areas with significant minority populations -
Prostate Cancer Statistics
Information from the NCI Surveillance Program (SEER), the CDC National Center for Health Statistics -
Conquer Prostate Cancer: How Medicine, Faith, Love and Sex Can Renew Your Life
Rabbi Ed Weinsberg, a prostate cancer survivor, patient healthcare and intimacy educator, author, and participant in several Us TOO forums, offers free teleseminars in support of prostate cancer patients, survivors and their wives or partners: “Enhancing Sexual Intimacy After Prostate Cancer" and "How Family, Friends and Support Groups Can Help You Get Through Prostate Cancer Treatment and Side Effects." - A Systems Pathology Approach to Post-Surgical Patients with Anxiety – Special HotSheet Burning Issues Supplement
- Prostate cancer and incontinence: coping strategies and treatment options – Special HotSheet Burning Issues Supplement
- Bone Health Take Action Tips
- Taking Care of Yourself While Living With Cancer: Dental Health and Osteonecrosis of the Jaw
- Prostate Cancer Screening: A Decision Guide – from U.S. Dept. of HHS, CDC
- Prostate Cancer Screening: A Decision Guide for African Americans – from U.S. Dept. of HHS, CDC
- NCI booklet: Understanding Prostate Changes: A Health Guide for Men
- NCI booklet: Treatment Choices for Men With Early-Stage Prostate Cancer
- “The Effect of Income on Prostate Cancer Patients’ Satisfaction, Awareness and Discussion Levels of Treatment Options”
- Fans for the Cure – Ed Randall’s Fans for the Cure is dedicated to the twin propositions of spreading the gospel of prostate cancer awareness and education. Founded by prostate cancer survivor and sports broadcaster, Ed Randall.
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Pints For Prostates
A grassroots campaign that uses the universal language of beer to reach men with an important health message, with appearances at beer festivals, social networking and pro bono advertising. - Prostate On-Site Project mobile screening van program
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National Alliance of State Prostate Cancer Coalitions (NASPCC)
An umbrella organization meant to encompass participation by all states – through their state prostate cancer coalitions, state prostate cancer task forces or state prostate cancer foundations. -
Prostate Conditions Education Council (PCEC)
Conducts nationwide screenings for men and performs research that will help the detection and treatment of prostate cancer and other men’s health issues -
Prostate Cancer Foundation
Prostate Cancer Foundation (PCF) is the world's largest philanthropic source of support for prostate cancer research -
Prostate Cancer Research Institute (PCRI)
The objective of PCRI is to educate patients and their families about prostate cancer -
Prostate Cancer Roundtable
a group of 12 independent, patient-centric, not-for-profit organizations that cooperate to foster the development and implementation of a national policy agenda supporting high quality prostate cancer research, the prevention and early detection of clinically significant prostate cancer, the appropriate care and effective treatment of men with prostate cancer, and the appropriate education of all men at risk for this disease. Us TOO is a charter member of this group. -
World Wide Prostate Cancer Coalition (WWPCC)
The WWPCC is a confederation of patient and professional organizations from around the world that will seek to share information, ideas, visions and dreams to minimize the impact of prostate diseases, especially prostate cancer, in the global community. -
YANA Now – You Are Not Alone Now
Read and post stories and experiences from prostate cancer survivors. -
ZERO: The Project to End Prostate Cancer (formerly NPCC, the National Prostate Cancer Coalition)
Advocacy and mobile van screening program
Resources for Spouses/Partners/Family
- Issues for Caregivers
- Learn more about Prostate Cancer
- Read article “Outer-course vs. Inter-course” by Dr. Jo-an Baldwin Peters, on sexual intimacy suggestions and tips
- Read “Ten Things I Learned from Loving in Sickness and in Health,” written by the spouse of a man diagnosed with advanced prostate cancer
- Intimacy & Prostate Cancer, More intimacy solutions for prostate treatment-related impotence, Us TOO teleconference held October 30, 2007, featuring Lawrence S. Hakim, MD
- Intimacy & Prostate Cancer, Solutions for reclaiming or redefining the intimate relationship as a result of prostate treatment-related impotence, Us TOO teleconference held February 13, 2007, featuring Arnold Bullock, MD
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Center for Intimacy after Cancer Therapy (C-I-ACT)
Helping couples renew their intimacy after cancer therapy. Ralph and Barbara Alterowitz are AASECT Certified Sex Counselors, and wrote the book "Intimacy with Impotence – The Couple's Guide to Better Sex after Prostate Disease".
Resources for U.S. Military Veterans
Click here to visit our webpage for military veterans.
- Veterans who were exposed to Agent Orange or other herbicides during military service may be eligible for a variety of VA benefits, including an Agent Orange Registry health exam, health care, and disability compensation for diseases associated with exposure. Visit the U.S. 'Department of Veterans Affairs' Agent Orange website or call (800) 827-1000.
- VA Benefits / Compensation
- Vietnam Veterans of America
- Agent Orange-Related Health Issues brochure or call (800) 882-1316.
- Self-Help Guide Service-Connected Disability Compensation for Exposure to Agent Orange at or call (800) 882-1316.
- If you need help with transportation, Disabled American Veterans transports Veterans with disabilities to Department of Veterans Affairs (VA) medical facilities for doctors’ appointments, medical tests and treatment.
- A Resource Guide for Veterans – My Prostate Cancer Roadmap
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American Legion
700 N. Pennsylvania St., P.O. Box 1055, Indianapolis, IN 46206 (800) 433-3318 -
AMVETS
4647 Forbes Blvd., Lanham, MD 20706 (877) 726-8387 -
Catholic War Veterans
441 North Lee Street, Alexandria, VA 22314 (703) 549-3622 -
Center for Minority Veterans U.S. Department of Veterans Affairs
810 Vermont Avenue NW, Washington, DC 20420 (800) 827-1000 -
Disabled American Veterans
3725 Alexandria Pike, Cold Spring, KY 41076 (877) 426-2838 -
Jewish War Veterans of the United States of America
1811 R Street NW, Washington, DC 20009 (202) 265-6280 -
Korean War Veterans Association
PO Box 407, Charleston, IL 61920 (863) 859-1384 -
Marine Corps League
P.O. Box 3070, Merrifield, VA 22116 (800) 625-1775 -
Military Family Network
P.O. Box 16366, Pittsburgh, PA 15242 (412) 531-1970 -
Military Officers Association of America
201 N. Washington St., Alexandria, VA 22314 (800) 234-6622 -
Military Order of the Purple Heart Service Foundation
P.O. Box 49, Annandale, VA 22003 (703) 354-2140 -
National Association for Black Veterans
PO Box 11432, Milwaukee, WI (877) 622-8387 -
Paralyzed Veterans of America
801 18th Street NW, Washington, DC 20006 (800) 795-4327 -
Vet Center
U.S. Department of Veterans Affairs, 810 Vermont Avenue NW, Washington, DC 20420 (800) 827-1000
Audio, Video, Tools & Links
- Understanding Diagnostic Testing for Prostate Cancer Patients, Us TOO teleconference and webinar held October 13, 2010, featuring Manish Bhandari, MD
- Estrogen Deficiency Side Effects Due to Androgen Deprivation Therapy Treatment for Prostate Cancer, Us TOO teleconference and webinar held September 23, 2009, featuring Samir Taneja, MD
- The Group Room radio show on Sharing, Caring, and Supporting Each Other Through Illness, held November 4, 2007
- Prostate Cancer Care: Past, Present and Future – Featuring Tom Kirk, Us TOO President & CEO, Jim Kiefert, EdD, Us TOO Board Chairman, Maureen Kiefert, caregiver advocate, and James McKiernan, MD. This was an Us TOO / HealthTalk live broadcast and teleconference held September 22, 2005.
- Us TOO International Summit, Symposium and 20-Year Celebration for men and their families battling prostate cancer, Us TOO University patient education program held August 20-21, 2010 in Chicago, featuring presentations from more than 30 speakers
- Watch more Us TOO videos on the Us TOO International YouTube channel
- View physician presentations from Prostate Forum of Orange County, CA Us TOO chapter meetings
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Us TOO: The Beginning Years – highlighting the start of Us TOO International, featuring founders, photos, documents, and events.
National Resources
An umbrella organization meant to encompass participation by all states – through their state prostate cancer coalitions, state prostate cancer task forces or state prostate cancer foundations.
Provides planners to cancer centers in all 50 states to give free to their patients and caregivers in need. Planners include essential organizational tools and important resources designed to empower patients and caregivers to take control over their diagnosis.
Provides online and telephone patient education
The Cancer Project promotes cancer prevention and survival through a better understanding of cancer causes, particularly the link between nutrition and cancer.
Uniting The Wellness Community and Gilda’s Club Worldwide, the Cancer Support Community is an international non-profit dedicated to providing support, education and hope to people affected by cancer
A non-profit organization founded in 2003 that educates, informs and empowers patients, the public, medical and research professionals, the media and policymakers about clinical research participation
A nonprofit organization providing patient awareness of clinical trials, facilitating access, promoting participation, and examines and confronts key issues impeding cancer research.
Department of Defense Prostate Cancer Research Program is the world’s 2nd largest funding agency for prostate cancer research.Read the "PCRP Perspectives" newsletter here.
Large health and medicine web directory for both humans and animals, linking to more than 30,000 health-related organizations
Provides one-on-one cancer support, connecting cancer fighters, survivors and caregivers.
A national non-profit organization whose mission is to reach men and their families where they live, work, play, and pray with health prevention messages and tools, screening programs, educational materials, advocacy opportunities, and patient navigation.
A national, non-profit 501(c)(3) organization dedicated to improving the quality of life of people with incontinence; a leading source for public education and advocacy about the causes, prevention, diagnosis, treatments, and management alternatives for incontinence.
Offers comprehensive information about coping with cancer, cancer causes and prevention, screening and diagnosis, treatment and survivorship; clinical trials; statistics; and more
This national, patient-led advocacy organization works on behalf of people with all types of cancer. Through its educational programs, publications and public policy expertise, NCCS is strengthening the cancer survivorship movement, empowering cancer survivors, and advocating for policy issues that affect survivors' quality of life
Online community for cancer patients and their support network offering free health tracking tools and personalized resources to improve their care and quality of life during treatment.
The University of Pennsylvania Cancer Center Resource
A national non-profit organization that serves as an active liaison between the patient and their insurer, employer and/or creditors to resolve insurance, job discrimination, and or debt crisis matters relative to their diagnosis through case managers and attorneys
The award winning patient website from the American Society of Clinical Oncology that provides accurate, comprehensive, oncologist-approved information to help people make informed health care decisions
A free, national service which provides a one-to-one supportive mentor relationship (phone or email based) to cancer patients and their caregivers.
A non-profit 501-c-3 organization dedicated to bringing the topic of incontinence out into the open, removing the stigma surrounding incontinence, and providing help and hope for people with incontinence, their families, and the health professionals who provide their care.
Non-profit, 501-c-3, national cancer awareness basketball tournaments and health fairs, plus National Physician & Family Referral Project (NPFR), which develops seminars, lecture series and coalitions of African American leaders for various diseases.
Regional Resources
- California Prostate Cancer Coalition
- Seattle Cancer Care Alliance
- University of Michigan Prostate Cancer Home Page
- University of Washington Genitourinary Oncology Clinical Research Group
International Resources
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BPS
The German prostate cancer self-help organization -
International Union Against Cancer
As the world's largest independent, non-profit, non-governmental association of cancer-fighting organisations, UICC brings together a wide range of international organisations, including voluntary cancer societies, research and treatment centres, public health authorities, patient support networks and advocacy groups. UICC disseminates knowledge and fosters best practices on a global scale. With over 270 member organisations in more than 80 countries, UICC is a resource for action and a voice for change.
Nutritional Information
End of Life
- Aging with Dignity – Five Wishes
- Conversation Scripts – Getting Beyond Resistance
- What is Hospice?
- Resources: Advanced Planning for Health Care
- Personal Medical Preference Quiz
- SAMPLE: Advance Directives Form (Note: Form may be unique in each state)
- What To Do After Signing Your Health Care Advance Directives
- How To Select Your Health Care Agent or Proxy
- Check List For Durable Attorney
- Principles for a Good Death
- After Death Decisions to Think About Now
Alternative Medicine
- National Center for Complementary and Alternative Medicine recently established by Congress