Taking part in clinical trials is not the only way to advance our knowledge of prostate cancer. What do we mean by non-clinical research? This simply means that you would answer questions about your experiences with prostate cancer, without any kind of medical intervention or change in treatment. Participating in surveys, interviews, and other types of non-clinical research is an easy and quick way to improve treatments and services for your fellow prostate cancer patients and caregivers. ZERO The End of Prostate Cancer’s surveys, for example, help shape the programs we offer to prostate cancer patients:
ZERO Treatment Decision Making Survey
If you have been diagnosed with advanced prostate cancer, we need your help. We are working in partnership with Dr. Alicia Morgans at Vanderbilt-Ingram Cancer Center learn about what is important to men when making decisions about treatment for advanced prostate cancer. Findings from this study will be used to help men in the future make treatment decisions about their prostate cancer.
The study will do several things.
- Identify things that men think are important when making decisions to treat their cancer.
- Determine what patients expect from treatments for their prostate cancer.
- Help researchers learn how real men make treatment decisions.
- Guide ZERO’s development of new educational resources for men with prostate cancer.
Eligibility: Men diagnosed with advanced prostate cancer. This can include men experiencing biochemical recurrence or metastatic (hormone sensitive or castration-resistant) prostate cancer.
How to Participate: The survey is temporarily closed. Call ZERO – The End of Prostate Cancer at (888) 845-9455 for an update.
Take the survey on the phone: contact Eden Schafer at Vanderbilt-Ingram Cancer Center via email at firstname.lastname@example.org to schedule a time to take the survey by phone
Additional Information: The survey should take no more than 10 minutes of your time and all men who complete the survey will be given the opportunity to participate in a drawing for a free Stop Cancer t-shirt from ZERO. Please note you must provide consent to participate and your email address on the survey.
ZERO Patient and Caregiver Survey
If you or a loved one has ever been diagnosed with prostate cancer, we need your help. The time of a prostate cancer diagnosis is a stressful one. As ZERO expands our patient support programs and services, it is important for us to hear what support needs you had at the time of diagnosis.
Eligibility: Current or former prostate cancer patients or caregivers.
How to Participate: You can take the survey HERE
Additional Information: This survey should take no more than ten minutes of your time and your answers will be completely anonymous. If you have any questions about the survey, please contact ZERO – The End of Prostate Cancer at (888) 245-9455. Thank you in advance for sharing your feedback and insights to help other men and families.
Past Survey Results
Your voice has had an impact! Here you can follow up on past surveys that we’ve conducted or advertised.
Our organization’s first patient education survey was conducted in late 2013 and early 2014. More than 1,400 prostate cancer patients, survivors, and caregivers responded. Read about the findings here.
In partnership with ZERO, Ferring Pharmaceuticals conducted two parallel surveys of prostate cancer patients, caregivers, and healthcare professionals to better understand the perceptions and experiences of prostate cancer. The results from the surveys gave us greater insight into the emotional impact of prostate cancer. Six hundred people responded to the surveys. Read about the findings here.
As part of the International Prostate Cancer Coalition, with the support of Bayer Healthcare, ZERO took part in a survey to examine the perspectives of men living with advanced prostate cancer and their caregivers to understand how they interpret the symptoms of advancing disease. Read about the findings here.